Today is day 4 of treatment for my first official flare up and let's just say this whole Crohn's thing is far from sunshine and roses. I was told I have this incurable disease, given medication and sent on my way. Right now it feels as though I am fumbling my way through the darkness. It is a good thing that I am good at researching and putting the pieces together because if I wasn't I may not be able to make heads or tails out of this whole thing.
I am still trying to sort out how I feel about this. I'm afraid that I have been a bit of a mess the last few days, both mentally and physically. The corticosteroids are a miserable drug that make me feel awful and my face all puffy. Hopefully I will only be on the highest dose for a few weeks. Then we can slowly reduce the dose until I have healed. I'm still only able to eat food in liquid form and even that is painful. I have to have less pain and be able to eat solid food before they will decrease the dose so we will see how this goes. The other thing I am struggling with is the feeling of loneliness that often follows a diagnosis like this. I have people who love and care about me, but they don't understand how I am feeling. They do their best to sympathize with me and show their support, but their life still goes on just as it always has. However, I feel as though I was just handed this bomb that has changed everything and now I have to figure out what to do with it. Does that make sense? I can't take a break from life. It still goes on and I still have to do all the things I have had to do before no matter how poor I am feeling. My son still needs to live life to the fullest and my family still needs to be taken care of. Though sometimes I wish I had someone there to take care of me....silly isn't it?
But that's what days like today are for. Whether I felt ill or not we were going to have a great day, and we did. We had a mommy and son movie date. It was so much fun. My best mommy friend and I took our boys out to lunch and a movie. We had the whole back of the theater to ourselves and the boys got their wiggles out by exploring the isles and making their way up and down the stairs. It was a 3D movie too so they felt extra special with their 3D glasses on. They loved the movie and made through the whole thing. That's impressive for our two energetic boys. We may even do it again. After Thanksgiving I think.
I am finding that even in the middle of this haze, there are still things that bring light into your life. Dear friends are one of them, and for me cooking is another. I know crazy right? I'm allergic to everything, I can't physically eat hardly anything, but I still love to cook. Last night I made Lemon Chicken with Baked Green Beans and Baby Potatoes. I couldn't eat it, but it didn't matter. My son loved making it with me. He learned how to zest and juice a lemon and had a blast using the garlic press. He did dilute the lemon juice when I wasn't looking, but it still turned out okay. Plus, my husband was able to come home to a warm dinner after he'd been out in the rain all day and tonight I am turning the left over chicken into a variation of "Asian Chicken Noodle Soup" by www.cookingclassy.com. (You can find the recipe at: http://www.cookingclassy.com/2015/09/asain-chicken-noodle-soup/. )
I'm a big fan of using what I have on hand when making recipes so for this one I used Sweet Onions instead of Green Onions, Button Mushrooms instead of Crimini Mushrooms, added an extra carrot because my son likes them, and omit the Sriracha sauce and dry Ramen Noodles. Why did I omit them, well I would have substituted a Gluten Free Noodle for the Ramen Noodles, but I didn't have any and I currently have an open sore in my intestines so spicy foods are not a good idea at the moment. The broth of this soup on the other hand, is delicious!
I always seem to close with an interlude about my son needing my attention somehow. It is true though and is what always seems to happen when you have a little one attached to your hip 24/7. Right now he just woke up from a nap where it looks like he was dreaming about ice cream. He is going to be very upset when he finds out we don't have any. Let's see if a Popsicle will do.........hmm apparently not..... I must go dry some tears and provide snuggles now. What a hardship...snuggles!!!
I wish you all the best! Talk to you soon,
Hi there! Welcome to Grace In A Glass. My name is Danielle and I am so happy that you are visiting this site today. We all have something in life that we are working to overcome. I began blogging about my struggle with overcoming Esophageal Dysmotility and Crohn's Disease with the hope of reaching others with words of encouragement and hope. Thank you for letting me share my stories with you, and hope you have the most wonderful day!